On Friday Dylan had his fourth MRI scan. It was of the entirety of his head & spine. He has been struggling on & off with back pain for the best part of a year. Initially the consultants thought it was due to his steroids (dexamethasone - which does cause him pain) but as time … Continue reading Scanxiety
So some of you might already know that on Friday 20th April my beautiful little sister Abi got married to the rather wonderful Jamie McGowan. From the very beginning of their relationship which started fifteen years ago whilst they were both at university these two glorious people have carved their way through the world as … Continue reading Days Like These
Mindfulness is not a direct path to peace & love, far from it; more often than not it feels as though I'm negotiating some very unforgiving terrain & there is no level ground in sight. I’m really struggling at the moment, it’s a combination of cancer related factors but my thought process is rather irritatingly … Continue reading My Mindful Anger
Once Dylan became an outpatient we were introduced to the Beads of Courage programme. Beads of Courage is sponsored by the charity Be Child Cancer Aware & was started in the USA in 2004 & in the UK in 2011 in order to help children with serious illnesses. They offer support with emotional and social … Continue reading Beads of Courage
Fact: I do not need reminding of how far Dylan has come, I see it for myself everyday; but to have written certain details here serves as a stark reminder that everyday since his diagnosis has been nothing short of a miracle. Sometimes when I sit down to write these blog posts I struggle to … Continue reading Facts & Stats
