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“It is great testament to the human spirit, we must continue to rise after adversity, as I truly believe this is where our biggest life lessons are learnt. The world will not save you. You will save you. You will find from your darkest depths, your most guarded shadows, a power to get through”.

Maya Angelou

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“Rest & laughter are the most spiritual & subversive acts of all. Laugh, rest, slow down.” That holiday... 💭 #annelamott #planb #laugh #rest #slowdown

Twelve whole months of being on maintenance. Twenty one & a half months left. A year ago Dylan was struggling with a lot of side effects the months & months of intensive chemo had caused him. He was weak, tired very quickly & had very little hair. I had expected life to get easier once maintenance started & it has to a degree but maintenance doesn’t mean cancer gets easier to live with, it means a little bit less chemo a little less frequently. The past year has been really difficult; frustrating, long & slow with tiny steps forward accompanied by tiny steps back; the first few months were tough & we’re yet to have a month go to schedule...but that’s cancer for you. At the beginning of maintenance I would never have dreamt we would be able to go away for a weekend let alone a week, but we did. We were lucky, Dylan had a good week health wise...it’s been a while since that happened. What I’ve noticed most this year (apart from the obvious visual) is how much his strength & stamina have improved. He still gets tired but the difference particularly in the last three months has been wonderful to see. It is still a lot easier to look back than forwards...it is still very much a one day at a time existence, but when I do look back I can see how much progress has been made in the last 365 days & it makes my heart happy. #oneyear #maintenance #livingwithcancer #childhoodcancer #childhoodcancerawareness #progress #lymphoblasticlymphoma

Dylan said “it feels really sad to be leaving this house” & I know what he means it was so beautiful; @golwgymorcottage 💗. Not only was the cottage just stunning we were also blessed with the most amazing weather, a wonderful location & not needing any significant medical intervention. We are now on our way back home having spent a rather precious week with our rather beautiful family in Newport, Pembrokeshire. We lived in the moment, laughed a lot, spoilt ourselves & made special lasting memories. I don’t think I need to say much more about how much this holiday meant to us...I’m a bit lost for words. #golwgymorcottage #newportpembs #makingmemories #ididntthinkitwaspossible #livingwithcancer #eternallygrateful #preciousmoments

Another day of this 🤗 #eternallygrateful #lovehim #hemakesmehappy #myboy

“Sir Dylan the Brave” as the lady in the gift shop aptly knighted him. He’s been very active the last few days; swimming in the sea, walking up & down ancient stone spiral staircases at Pembroke Castle, walking down the hundreds of steps to Tenby beach then back up again. He’s not used to this much continual exercise but it’s doing him good; we need to be careful though, too much exercise & he won’t be able to recover. Yesterday afternoon he was tired...unsurprisingly. So today we’re just going to chill out & stay local. #brave #progress #strength #stamina #livingwithcancer #childhoodcancer

TEAM We got this ✌🏾🖤✌🏾 #team #teamwork #dreamteam #wegotthis #livingwithcancer #childhoodcancer

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